A place to see good, share good, and do good.

Refresh Not-LiftedLIFT 1 Lifted

FollowUn-Follow this World Spotlight  

Show on your Nest:



Flag as Spam or Fraud

The Buzz

This World Spotlight was created on Apr 24, 2020 @ 05:22:01 pm

See all Buzz

StandPart with One World Blue, LLC to connect and show activity on your Nest

Show on your Nest when One World Blue, LLC:








What's this?The list of who you connected to, and who connected with you, is normally public. This can help you and others find like minded or interesting people to connect with. But if necessary you can hide this connection, and it will not be visible to anyone, not even the person you are connecting to.

 

Comments

No Comments yet

Login or create an account and you can comment too!

Stand & Unite

Your Nest   Refresh

Login or create an account and you can create your own personal Nest!

Browse Light on the World Spotlights

Healing A Mother's Promise

Eliana1.jpg

Miracles happen all the time in Fundraising and Rising to the Challenge

People Can and Do Come Together and Unite

Crowdfunding effort raises $2.2 million in 5 days to save Florida toddler’s life

JTA — A campaign on a crowdfunding website raised more than $2 million in five days to provide a “miracle drug” to help a sick 2-year-old Florida girl.

Eliana Cohen, daughter of Ariel and Shani Cohen of Aventura, was diagnosed with an extremely rare disease called spinal muscular atrophy shortly before her second birthday after an earlier misdiagnosis of her very weak lower body muscles. The genetic disorder usually occurs in infancy, when it is fatal.

Once the diagnosis was made, the family learned of a drug recently approved by the FDA called Zolgensma that could save Eliana’s life. She would have to take the medicine — the first gene therapy approved to treat children younger than 2 with SMA — before her second birthday on July 20, as stated by the FDA approval. The catch: The one-time dose cost $2.2 million and was not covered by insurance.

The crowdfunding campaign on The Chesed Fund website raised $2,202,364.80 from 23,353 donors between July 12 and July 17. The donations came in dollars, British pounds and shekels.

Eliana received the treatment on the Friday before her birthday, and was doing well over the weekend, the Miami Herald reported.

As part of the fundraising efforts, Shani Cohen appeared in a 16-minute video talking about her daughter, the disease and the couple’s efforts to save her life. It has been viewed over 72,000 times. Meanwhile, an Instagram account to follow her progress was established. A Facebook page called “Help US Save Eliana” also has provided updates.

“We want to take the opportunity to recognize and thank each and every one of you for your tefillos (prayers) and generous support. Please continue to pray for Chana bas Shani, as we still have a long way to go!”

Retreived and edited from: https://www.timesofisrael.com/crowdfunding-effort-raises-2-2-million-in-5-days-to-save-florida-toddlers-life/
Written By Marcy Oster

Accounts
Manage Account Privacy Policy Terms of Use Join Sales Team
Contact
Feedback Report a Problem Contact Us About Us
One World Blue Network
Initiatives Light on the World Planet Sanctuary Light of Culture Stand & Unite List Initiatives List World Spotlights List Planet Spotlights List Culture Spotlights
Universality
Universal Human Rights Peace in the World Social Network for
Social Change
           

© 2014-2024 One World Blue, LLC ®